Good news , but still the start of a long road....

Grace got some great news at the doctor today. First of all, Grace's ANC count (white blood cell formula) was 3100, really high compared to when she left the hospital last week at 120. Since her ANC is high she is able to go out in public and start school if she is feeling well. She is also done, for a little bit, taking Dexamethasome, a drug that has made her appetite insatiable and her mood change rapidly. Both of these figures show how well her bone marrow is doing at creating new and healthy cells.

This being said, Gracie has been feeling very lethargic and tired. Short walks up the stairs and around the house tire her out tremendously. Her energetic, vivacious self can be seen in glimpses, but is short-lived. We are so happy about her good news, but we know from her that there is a long road before we get Gracie 100% well. Because of her long stay at the hospital and in her bed her muscles are weaker and her stamina has depleted. Hopefully, this break from the medicine and her body producing better cells will help in the future. Next week Grace will be getting a port and will have her PICC lines removed from her arms. This means that she will be able to shower, swim, and get wet since the Port will be under her skin and not prone to infection like her PICC line has been.

The road ahead is a couple of years of treatment starting with 3 more spinal taps to prevent cancer from appearing in her spinal column.

Tanner is doing great at soccer. His vocabulary words, I cannot spell or define, and his math is very challenging. He is really liking his new school and has already made a couple of friends. He has chosen spanish for his language and at this time is thinking of playing the trumpet for music.

Eva is constantly asking us to walk her, which means hold her hands and let her walk around. She also is in love with walking up and then down stairs, or walking up and then sliding down the slide.

Bone marrow test today

We're headed in today for Grace's next Bone Marrow test. She is being really brave about it this morning, though she doesn't want to do it. We go tomorrow for a consultation with her surgeon to fully understand how her porta catheter will work. She is getting surgery on the 16th to place a port near her heart through which her medicines/chemo/etc. will be administered. Though we wish she didn't have to go through that, it will be-in many ways-easier than her IV/Picc line for her. We'll let you know what we hear!

Latest happenings...

How exciting! We got a call from our principal yesterday saying Tanner did really well in his math placement testing. Congrats Tanner! Way to go! He's enjoying his new school and friends! He's also tearing up the fields in soccer lately. He's a joy to watch grow.

Eva is really trying to walk! She grabs our hands and shouts "WAAAAk WAAAAAAAAAK!" and then we know she wants a little walking support. She is hilarious. She's been funny lately, tickling people's toes and then laughing hysterically, growling like a little bear and saying "Oooooo" for "scary." She is also constantly kissing everyone. She's really growing up quickly and it is so fun to watch!

Grace is doing really well, all things considered. She's extremely tired, but she tries really hard to keep up with everything. Yesterday, she was up for a trip out of the house. Our options are limited, as she can't be in crowds, but she thought she'd like to go to the corner market for treats for her siblings. She was able to walk about 1/4 of a block-which is really wonderful-since it has been hard for her to even walk up the stairs at home. So, we were really proud of her efforts! She tries so VERY hard! (these pictures were taken at the zoo the day before she got so sick and went to Doernbecher's. Surprising, huh! You'd almost never know she was sick!)