Grace got some great news at the doctor today. First of all, Grace's
ANC count (white blood cell formula) was 3100, really high compared to when she left the
hospital last week at 120. Since her
ANC is high she is able to go out in public and start school if she is feeling well. She is also done, for a little bit, taking
Dexamethasome, a drug that has made her appetite insatiable and her mood change rapidly. Both of these figures show how well her bone marrow is doing at creating new and healthy cells.
This being said, Gracie has been feeling very lethargic and tired. Short walks up the stairs and around the house tire her out tremendously. Her energetic, vivacious self can be seen in glimpses, but is short-lived. We are so happy about her good news, but we know from her that there is a long road before we get Gracie 100% well. Because of her long stay at the hospital and in her bed her muscles are weaker and her stamina has depleted. Hopefully, this break from the medicine and her body producing better cells will help in the future. Next week Grace will be getting a port and will have her
PICC lines removed from her arms. This means that she will be able to shower, swim, and get wet since the Port will be under her skin and not prone to infection like her
PICC line has been.
The road ahead is a couple of years of treatment starting with 3 more spinal taps to prevent cancer from appearing in her spinal column.
Tanner is doing great at soccer. His vocabulary words, I cannot spell or define, and his math is very challenging. He is really liking his new school and has already made a couple of friends. He has chosen
spanish for his language and at this time is thinking of playing the trumpet for music.
Eva is constantly asking us to walk her, which means hold her hands and let her walk around. She also is in love with walking up and then down stairs, or walking up and then sliding down the slide.