Monday, November 17, 2008
Bracelets are in!
Thank you once again Grandma, Grandpa, Nick, Max and Sam for the second order of great bracelets.
We have been trying to keep track of who has requested them, but don't feel afraid to ask when you see us.
We have been trying to keep track of who has requested them, but don't feel afraid to ask when you see us.
Sunday, November 16, 2008
Spinal Tap in the morning
This has been a weekend of many ups and downs:
Tanner's soccer team had a end of the year party and it was great. We all got flu shots. As soon as Eva saw the doctor she started to wail, then Grace started cry and there we were, a family of 5 in a little room at the doctors office getting our shots to the tune of crying.
Grace has been very brave. She has not been feeling well and yet continued to try out many things this weekend. We are so very proud of her. Grace went to two birthday parties, one of which was a rollerskating party, and participated in the primary program for church, saying all her lines in front of the congregation. The rollerskating party was great. Grace played with her friends for a couple of hours and even Eva rollerskated between my legs. She has been in high spirits, but tonight she gave us a small peak into what goes on in her life and inside her head.
As Grace was eating an apple tonight she was starring at a picture of herself on our fridge. She began to cry telling me how she wished her life was what it was like before getting sick. She said she hated going to the doctor, hated taking medicine, and wouldn't be back to being healthy until she was a teenager. Kim and I tried to comfort her, but we wanted to let her express herself. When Tanner heard Grace he told her that she should be grateful , although she is going through a very difficult time, she would not want some other girl to have Leukemia who does not have the same family and friend support as Grace. This seemed to comfort grace and once again it was such a sweet moment revealing a little of their relationship. We tried to tell Grace that we felt the same way and wished that we could go through this instead of her. Grace responded "Oh it hurts so bad I would never want this to happen to you."
Because of her courage and positive attitude we forget that Grace hurts all the time. Because she is such a trooper it is nice to hear from her about her feelings. We know everything will go well with her spinal tap and Chemo in the morning and will post with some updates.
Tanner's soccer team had a end of the year party and it was great. We all got flu shots. As soon as Eva saw the doctor she started to wail, then Grace started cry and there we were, a family of 5 in a little room at the doctors office getting our shots to the tune of crying.
Grace has been very brave. She has not been feeling well and yet continued to try out many things this weekend. We are so very proud of her. Grace went to two birthday parties, one of which was a rollerskating party, and participated in the primary program for church, saying all her lines in front of the congregation. The rollerskating party was great. Grace played with her friends for a couple of hours and even Eva rollerskated between my legs. She has been in high spirits, but tonight she gave us a small peak into what goes on in her life and inside her head.
As Grace was eating an apple tonight she was starring at a picture of herself on our fridge. She began to cry telling me how she wished her life was what it was like before getting sick. She said she hated going to the doctor, hated taking medicine, and wouldn't be back to being healthy until she was a teenager. Kim and I tried to comfort her, but we wanted to let her express herself. When Tanner heard Grace he told her that she should be grateful , although she is going through a very difficult time, she would not want some other girl to have Leukemia who does not have the same family and friend support as Grace. This seemed to comfort grace and once again it was such a sweet moment revealing a little of their relationship. We tried to tell Grace that we felt the same way and wished that we could go through this instead of her. Grace responded "Oh it hurts so bad I would never want this to happen to you."
Because of her courage and positive attitude we forget that Grace hurts all the time. Because she is such a trooper it is nice to hear from her about her feelings. We know everything will go well with her spinal tap and Chemo in the morning and will post with some updates.
Monday, November 10, 2008
IT HAS BEGUN!
All day today Eva wanted to wear Grace's clip-on cheesified earrings.
I guess having Gracie as a big sister makes being a girly-girl inevitable.
Tanner's soccer team ended their season undefeated. We are so proud of Tanner. He had 4 goals in the last game and left it all on the field. He is also loving school and working very hard each night. He has been invited to participate in a program called Destination Imagination which starts on Fridays. He went to the first class and really enjoyed it.
Gracie has been doing well, but Kim and I have noticed what is called "Chemo Brain." We were warned that it would happen by the doctor's and hopefully it should be a short term thing. For example Grace loves doing her letters for homework, but once in a while she will forget how to form a letter. She knows that she has learned it but her brain is sometimes slow to catch up, which is very difficult for her when she has written that letter many times in the past. Last night she woke up in the middle of the night and was so frustrated. She could not express herself because she said she couldn't remember the word she wanted to use. We have been doing all we can to help, but have noticed that most of the time it happens when she is very tired. She is very optimistic and most of the day very energetic and happy.
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