Tuesday, March 3, 2009

Chemo today...

Grace had her second round in Interim Maintenance 2 today. They have upped the dose of Methotrexate and will continue to do so each time she goes in (6 more weeks of Interim M). So far she has tolerated it really well. They also gave her Vincristine, which she usually doesn't tolerate well, but tonight things were ok. Vincristine is tough, though. Some side effects that we've noticed in her are jaw pain, drooping eyelids on occasion (very startling when it happens), extremity pain, muscle weakness. I really don't care for Vincristine. I just fake a smile in front of her when the push it through her port, because though I know it saves her life, its effects are so rough. The Methotrexate causes mouth sores, loss of appetite, and decreases her red and white blood cells and platelets (explains why she bruises so much).

Having said all this nonsense, she really is feeling pretty well and her numbers were good today-at four thousand two hundred. So, we're relieved to be chiseling away at the days left of her treatment-only 772 left to go.

On a better note, Grace is doing great with her piano lessons, loving art work, and amazing us with her great reading skills!

Tanner is seriously loving Star Wars and has a Destination Imagination (school team) competition this weekend. He's pretty excited! He has been doing awesome at basketball and was asked to attend the national young leaders conference in D.C. this summer. We are very proud of his hard work.

Eva is nearly over her yucky cold, poor dear and still manages to be sweet and wonderful. She loves going outside in our yard and jumping on the trampoline. When asked what she wants to dance to, she replies "lady ga-ga."

See-life isn't so bad...I just need to remind myself of that ALL the day long!

5 comments:

Jenell said...

I completely agree on the vincristine. It is also one of our least favorites. It makes all of Avarie's nerves hyper sensetive. She then doesn't like to be touched and considering that she has no use of her legs and is back in diapers that is a problem. We've only gotten the mouth soars once from the methetrexate, it was so sad. They just popped up so fast, luckily they don't last too long and the pink mouthwash stuff is great. I hope things continue to go well for you. Thank you for your email. It was exactly what I needed today. I hope one day we can actually meet. I have so enjoyed getting to know you through your blog.

Jen said...

I am so glad that Grace's numbers are high, but can't believe that ridiculous number of days remaining. YUCK! Way to go, Tanner, what a smarty, and he's adorable, sweet, and doesn't seem to have any downfalls! Eva is a rockin' dancer. I can't believe she knows who lady gaga is...she is so cool and hip! Thanks for the great updates!

Kristen said...

Ok, you KNOW I am loving Eva saying that :) What an update...Your family is just awesome, and your outlook on life refreshing.

Raina said...

How in the world do you have time for piano lessons? You are seriously amazing. I wouldn't be able to keep up on the medicines, none the less all the other things that life brings. :D
And... is Eva just yummy! That twirl would impress any dance judge. She is amazing!

Unknown said...

I am so sorry that Grace has to endure this on a daily basis? You are so positive and please know that you are not alone in this--we all love you and pray for your family! Baby Eva could not be cuter--tell her they are playing that song on the radio a bit too much if you ask me???? She is smart and darling and please kiss those kids for us. . . . Thank you for taking the time to send Ellie a birthday gift--you have so much to worry about, and yet you think of others? AMAZING!!! She loved the polly pocket and microphone because she is a little diva these days. . .