We have continuously been impressed by Grace's school class (and their parents) and Grace's teacher Miss Pruneda. Grace wants to go to school, but frankly-there are multiple reasons that hasn't been possible, just some of which are exhaustion, not feeling well, and also the emotional issues that accompany childhood Cancer. Grace is really afraid to leave us, since her world was flipped upside down. That's why we were particularly touched that her class would extend themselves to us in this wonderful way. Miss Pruneda organized a fieldtrip to our home and the kids had circle time in her bedroom as they went over division and math work. Then they had recess in our backyard. It was a really sweet experience. Sadly, Grace was on steroids that week and she cried the entire time they were at our house, but she still was so glad they came. I think all the attention overwhelmed her. Not to mention she has felt so horrible and exhausted all week. It was eye opening for me to see just how taxing situations are for her in which she has to be "on." Grace tries really hard-she's a really happy little girl. And, yet her body just can't quite keep up with her mind and desires right now. But, I'm so proud of how hard she tries to keep up and how much she desires to enjoy life. Thankfully-her steroids are done for the week, and by the end of this coming week the effects will be leaving her body. She has tolerated her spinal medicine this week, but the rest of her medicine has really knocked her out. She begins oral Methotrexate tomorrow, so we'll see how that affects her. She's had it Intrathecally (spinal taps) often, but never orally. We love her spunk and we love her smile. We hope to see it a lot more as her body adjusts to her new chemo schedule.
10 comments:
That is so great! I love their little uniforms. I can see why it would all overwhelm Grace a bit, but what a great thing for them to do, and it sounds like she has a great teacher. I hope that the rest of the meds go down easier, and that she can rebound a bit in the next little bit. Let's get together VERY soon!
What a sweet class and teacher! I hope Gracie feels MUCH better soon.
What a thoughtful teacher! Hey, we definitely want to come over on the 8th! We're so excited! It will be SO wonderful to see you again. :)
How neat!! She must have a great teacher! Though I totally understand why she would feel overwhelmed - that is a lot to take in even when you are healthy. I hope she does well with the next steps of treatment. By the way the gardens and the indoor bounce house looked like a lot of fun!!
Wow! What a special class and teacher! That is really awesome. I am sorry Gracie has not felt well, I am sure all her medications come with hard side effects. Hang in there! You are so inspiring and you and doing such a great job. I hope she gets better soon and those numbers keep climbing...
All I can say is I totally understand the steroid thing. I often worry that people think Avarie is just a really unpleasant child. Its only recently that the hospital staff has gotten to see what a happy sweet little girl she is. Steroids are one of my least favorites of the different chemos, actually I can't think of any of them that we like. We are also doing Methetrexate starting this Friday, ours is a little different form then yours, but of all the different chemos that one seems to have the least effect on her.
What school do your kids attend?
What a wonderful thing!!! I'm sure the kids in the class will remember the experience for a long time!!! And, poor Grace... I just can't believe this ordeal isn't past yet!! grrr... I hope she keeps getting better quickly.
What a thoughtful cool school! We are so glad you got to adventure out and soak up the sun at the beautiful garden. You all look amazing and really happy! We are sorry we missed you the other day. We are looking forward to summer and visiting Gracie's new playhouse. :>)OXOXOXOXXOXOOXXO
How lucky is your little girl to have such a caring teacher. I cant believe that her class did that for her--what a gift for Gracie and your family. Loved the photos, and I hope she is feeling somewhat better this week. Tell Gracie that I just saw Wicked lastnight and fell in love with Glinda--she literally stole the show! I miss you all, I am waiting to hear if you are still coming to Utah--if so--we will see you Thursday night. We love and miss you all. Gracie--we r still on for our sushi date my little princess!
Wow, what a sweet gesture. I think I would cry the whole time too. It is so hard to put on a happy face when it just isn't there. I am sure they all know what that meant to Grace and you. I hope that she can feel her happy self soon. We love you guys.
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