Friday, April 3, 2009

Dear Grace,

Did you know that when you were born, there were fireworks? Literally! There were fireworks! You were born on a Utah holiday- a day which celebrates Pioneers and their faith, fortitude, and ability to overcome great hardships. How appropriate, don't you think? Mom and dad have felt fireworks with each of your milestones-your first smile, first words, the first time you turned your head and batted your long, dark eyelashes and made dad give in, the first time you sang in primary, the first time you overcame your fear of needles (or rather just learned to cope), the first time you walked into the hospital on your own two feet instead of me carrying you. Yours is not a typical life, Grace. But, that just means your destined to grand things!

Yesterday you hit a milestone! You've struggled so much-too much to explain, but there is light at the end of this dreary tunnel. You have made it through Interim Maintenance, and in two weeks you begin Maintenance with a spinal tap and chemo. Wow! You have made it through 8 months of the most taxing ordeal I can imagine for a precious, tiny child and through it all Grace you have been tender and you have smiled. Even in the hardest moments, Grace, you have smiled. That is quite a testament to who you are. When we visited the hospital for chemo yesterday you were gleeful at the news that you'll now only have to visit the hospital once a month for chemo, instead of weekly, and have spinal taps only every three months. We will give you three chemos and other medicine from home nightly for two years, but I think these next two years will be easier on your body than the pain you have known. Your blood counts were higher than they have been in 8 months, also-at a very high 9.7!!! I can't even tell you how grand the fireworks were in our eyes yesterday Grace! We are so proud of all you've accomplished in the last 8 months.
Mom and Dad hope you can take all you've learned (and all that you will learn in the next two years of fighting Cancer) and live a greater life, for the experience. It is our hope that you will continue to smile, because life is good, despite the challenges. Our friend, Stacy sent me this quote-I love it! "We sometimes see subtractions when we're ill. They're not just subtractions. I'm not me minus anything; I'm me plus this experience. Whether it's good or bad is a subjective thing."
You are infinitely strong, little Grace. Remember God. Remember He has walked with you. Remember you were never, are never alone. Remember love. It is everything. Remember one of our favorites:
"Be still, my soul; the Lord is on thy side; Bear patiently the cross of grief or pain; Leave to thy God to order and provide; In every change He faithful will remain. Be still, my soul; thy best, thy heavenly friend, through thorny ways leads to a joyful end."
We love you! Love,
Mom and Dad

13 comments:

Heidi said...

How sweat. What a great letter to your daughter. I'm glad to hear things are getting better. Be strong.

Jen said...

That is so sweet. And, the best news! Grace has made it through the worst and she has inspired me more than she will ever know. I am so happy that she will have to walk through those doors to the hospital less, get poked less, and be sick less. Please give her a big HUG from me tonight. I am thinking about her as always!

Raina said...

Wow! What a beautiful letter... perfectly eloquent and tender from you both! Someday this will be more of a hard to remember memory, and this will keep her thinking of her strengths. I love this, you are all an inspiration!

Stacy said...

Great letter for Grace. I'm so happy to hear her counts went UP! She is one lucky girl to have two wonderful parents. Congratulations to all of you.

Michelle said...

Beautiful! I am so happy to hear that there are fireworks today!

Kristen said...

breathtakingly beautiful!

Jenn & Cardy said...

You guys are awesome.

Fancy Nancy said...

I loved reading your letter and I am so happy that Gracie's numbers continue to go in the right direction! I also love how you express this whole experience, especially for Grace.

Erin said...

Now I will never see a firework without thinking of Grace. What a beautiful letter. I am thrilled that her numbers went up. You are all such an inspiration. Here's hoping the next couple of years move by quickly. We love you.

Unknown said...

could grace have better parents?! i mean...really - God sent gracie to you for this very reason. we are so pleased that she has conquered so much and with a smile none-the-less. we love all of you.

MeriKaye said...

OK. This is such great news, and such a beautiful blog entry that I had to get a "blogger account" just to express how grateful I am for this turning point for all of you. You are a strong, positive, exceptional family. Grace is an inspiration to all of us, and her sweet siblings are absolute symbols of pure love and faith. Kim and JR-- your parenting is motivating and incredible to witness. By the way, the black and white photo of Grace could not be any more gorgeous!

Dina said...

Beautiful. I'm so happy that Grace has endured this battle so well and made it to this milestone! I'm a little behind and just read about Grace's Spinal Headache. That makes me sad she had to go through that. I got one after my first epidural and ended up in the emergency room twice. So, this tiny single part of ALL that she has gone through I can sympathize with her. I'm glad her counts are up to. Yay Grace!!

The Safari Family said...

We were so sorry and sad to read the last part of Interin Maintenance didn't go so well. You can just see the worry in T's eyes. We are extremely sorry we weren't there for you to help you out. :>( We are happy you are through that nasty part though and look forward to better times for your family with Maintenance.We wish you many better days, filled with gleeful smiles, and super-power health. We like your mile-stone marker letter very much. Thank you for taking the time to keep us updated with your family. OXOXOXOXXOXOXO these are for Eva xoxoxoxoxxo. no more war! No More War! NO MORE WAR! Peace! PEACE! PEACE PLEASE!!!